(VINnews) – Brooke Eby, a prominent ALS advocate and social media creator who openly documented her battle with the disease, died Thursday night at age 37.
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Marc Benioff, the Jewish co-founder and CEO of Salesforce, confirmed her death in a post on X, calling Eby an “amazing warrior” and remembering her for an extraordinarily positive attitude.
I am just devastated to hear of the passing of Brooke Eby @limpbroozkit. Brooke was an amazing warrior with an attitude so positive it could melt a glacier. All of my thoughts are with her Ohana at this time. May the One who brings Peace bring Peace to All. ❤️ pic.twitter.com/7nabrxYeSU
— Marc Benioff (@Benioff) October 2, 2026
Eby was diagnosed with amyotrophic lateral sclerosis in 2022 at age 33. She became widely known for documenting the progression of the disease on social media, using humor and personal storytelling to raise awareness about ALS and the challenges faced by patients and their families.
Despite her diagnosis, Eby continued working at Salesforce, where she had been employed since 2016. The company supported her as her condition progressed, allowing her to continue her career while adapting her work arrangements to accommodate her increasing physical limitations. Salesforce also highlighted her story publicly and provided her with a platform to advocate for ALS awareness.
Eby said in a Salesforce interview that flexibility and understanding from her colleagues were particularly important as she dealt with medical appointments and the difficulties of traveling and attending conferences. She also credited the company’s health benefits with helping her obtain treatments and equipment.
Her experience at Salesforce became an example of how an employer can accommodate an employee facing a devastating illness rather than forcing that person to immediately leave the workforce. Her continued employment also allowed Eby to use her professional platform to advocate for ALS research and support.
Eby founded ALStogether, a community connecting people with ALS and their caregivers, and helped raise significant funds for ALS research. Salesforce employees also created ALSforce, an internal group inspired by her advocacy that grew to hundreds of members and raised money for ALS-related causes.
Her advocacy extended beyond Salesforce. Eby built a large following through candid videos about living with ALS, addressing everything from mobility and medical treatments to the emotional and practical challenges of living with a terminal illness.
Her death was announced by Benioff Thursday night.
In his tribute, Benioff said his thoughts were with Eby’s family and wrote that he hoped the “One who brings Peace” would bring peace to all.
Eby’s story leaves behind not only an extensive record of ALS advocacy, but also an example of how continued employment, flexibility and support can allow someone facing a serious illness to remain professionally active and make a broader impact.